Friday, May 12, 2017

Why are we waiting....for a cure for Chronic Fatigue Syndrome?


"Today is the 25th anniversary of May 12th International Awareness Day for Chronic Immunological and Neurological Diseases. They include Myalgic Encephalomyelitis, Chronic Fatigue Syndrome, Fibromyalgia and Multiple Chemical Sensitivity / Environmental Sensitivities."

https://www.facebook.com/may12th.awareness

I do not have any of these diseases, but I know enough to be sure that these people are not spending their lives in and out of beds, foregoing careers, livelihoods, recreational activities, travel, family life, for some the opportunity to marry and have kids, some for decades, just for a lark. I ask you, in the entire history of psychiatry or medicine, has there ever been such a phenomenon? Do perfectly fine people just give up on life for no apparent reason? Even the most badly affected depressives often manage to lead busy lives.

I'm furious about they way that science and medicine and governments have defamed and neglected and ignored these people! Read the things linked to below, and I'm sure you will feel the same way. Most people with CFS and fibromyalgia are women. Most doctors are men. Is misogyny a factor? Of course it is! There's a group of researchers who deserve to lose their professions and jobs.


http://theconversation.com/how-a-study-about-chronic-fatigue-syndrome-was-doctored-adding-to-pain-and-stigma-74890

https://jcoynester.wordpress.com/2017/05/11/patients-writing-about-their-health-condition-were-abused-by-a-peer-reviewer-and-silenced-by-bmj/






No comments: